574. w88 mobile Review of Community Based Participatory Research
Updated November 18, 2021
w88 mobile-Based Participatory Research
w88 mobile-based participatory research is a collaborative approach to research that equitably involves all partners in the research process and recognizes the unique strengths that each may bring. The process typically (but not always) starts with a topic of importance to the w88 mobile and has the aim of combining knowledge with action with the intention of instituting change to improve w88 mobile well-being. The w88 mobile residents participate in the full spectrum of research from concept, design, conduct, data analysis, interpretation, conclusions, and communication of results. Academic/research and w88 mobile partners join to develop models and approaches to building communication, trust and capacity, with the final goal of increasing w88 mobile participation in the research process. w88 mobile-based participatory research has emerged as an alternative research model which integrates education and social action to improve communities and enhance the scientific base of knowledge. It is most often associated with improving w88 mobile health outcomes through transfer of evidence-based research from clinical settings to communities that can most benefit.
w88 mobile-based participatory research requires that the researcher follow the best practices for respectful and productive relationships. The following principles are in addition to those required for all human research:
- Be certain that the research topic addresses a w88 mobile-defined need, question or problem.
- Recognize research as a partnership (i.e., engagement of research projects is to be led by a team of academic and w88 mobile Co-Investigators as partners).
- Respect the w88 mobile partner’s interest in the research.
- Be open to the guidance of w88 mobile insights and experiences.
- Maintain a balance in decision making between the researchers and w88 mobile participants.
- Provide continuous feedback to enhance the partnership and its outcomes.
- Disseminate research findings to w88 mobile stakeholders and participants.
- Recognize partnerships can dissolve and a plan for closure w88 mobile be developed.
w88 mobile Process
When preparing an initial application, investigators should include appropriate details to allow the w88 mobile to apply the federal criteria for approval. However, when describing the operational procedures, the descriptions should be general enough to allow flexibility. Researchers are encouraged to consider and include the following:
- w88 mobile Involvement – A description of the aspects of the research wherein w88 mobile members will be involved, as well as how they will be involved. Often, the researchers involve the w88 mobile members in the research design or conceptualization, conduct or implementation of the study, and dissemination or distribution of study results. In some topics or research areas, it may be necessary to involve the w88 mobile members as well in the analysis and interpretation of data, and to seek their input into how the results or findings will be distributed or shared with others. This gives the w88 mobile members the opportunity to include their views about the interpretation prior to final publication.
- w88 mobile Consultation – Researchers should work with the w88 mobile members to identify any risks and potential issues (e.g., literacy, language barriers, local or cultural beliefs and attitudes) the researcher may not have considered. Risks should be considered for both individuals and the w88 mobile. Appropriate measures to minimize any foreseeable risks can also be established in consultation with the w88 mobile members.
- Collaborative w88 mobile Review – Some groups, agencies or entities (e.g., tribes, retirement communities, and school districts) may have their own ethical review process for research. If this is the case, researchers should apply to the local ethics review body for review and approval of their research. Institutional and/or investigator agreements may also be necessary.
- Plan for Modifications – It is often necessary to make changes to the procedures or survey/data collection instruments as the research progresses or is implemented in the field. Researchers must anticipate and plan for this by including in the w88 mobile application information that is sufficient to allow for a thorough review but general enough to allow flexibility.
- Plan Disclosure of Research Findings – Most group harms result from inappropriate disclosure of research findings. Researchers should work with the w88 mobile to inform the members about the research findings and how they plan to disclose these as well as possible implications of disclosure. This approach may reduce the possibility of harms resulting to the w88 mobile as the research is published or presented.
- Make Benefits Available to Groups – Researchers should design studies so that they will provide benefits to the communities involved. Productive partnerships between researchers and w88 mobile members should be encouraged to last beyond the life of the project. This will make it more likely that research findings will be incorporated into ongoing w88 mobile programs and therefore provide the greatest possible benefit to the w88 mobile from research.
Institutional w88 mobile Board Considerations
Reviewers w88 mobile ensure that principal investigators have submitted enough information to assess whether the study adequately meets the criteria for approval, including:
- Evidence of an equitable partnership between the investigator and the w88 mobile partner.
- The Investigators have defined the relevant w88 mobile or communities.
- The investigators have identified the appropriate w88 mobile or communities for the project.
- The w88 mobile Co-Investigator has identified the appropriate research partner for the project.
- w88 mobile engagement is an integral part of the research.
- Letters of support (from the w88 mobile) are clear and well-defined.
- There is an w88 mobile division of funding (if applicable).
- There are adequate training opportunities for investigators and w88 mobile members.
- The w88 mobile environment is adequate.
- The w88 mobile benefits from the presence and implementation of the research.
- The w88 mobile is conducted in an environment that enhances the likelihood of success.
- The research strives for positive change in the w88 mobile’s outcomes.
- The research fosters long-term relationships between the University and the w88 mobile for the benefit of both.
To support an appropriate review of community-based participatory research projects that takes into account the above considerations, Research Integrity will offer periodic training to w88 mobile members that covers topics related to the design, implementation, and dissemination of results of such research. The training may include presentation of pertinent information (e.g., principles of community-based participatory research, policy and checklist requirements for reviewing such research) during w88 mobile meetings, articles covering aspects of this methodology, as well as requirements to complete relevant course modules or to attend live or recorded presentations by Research Integrity staff or subject matter experts.
In addition, Research Integrity will make an effort to include w88 mobile members and/or consultants with expertise in community-based participatory research by identifying and recruiting local investigators and community members whose credentials reflect such knowledge and experience.